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MERRF Syndrome and Motherhood: Raising and Remembering Dahlia - Jessica’s Story (248)
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A Cerebral Palsy Diagnosis: Traumatic Birth, Micropreemie Twins & the Power of Hope {REPOST}- Savannah’s Story (247)
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Pyroxd1 and the Path Forward: A Rare Disease, a Life-Saving Lesson & a Mission to Help Others- Maria + Matt's Story (246)
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Navigating HIE: Hope for Families, and Life Beyond the NICU [REPOST]- Betsy's Story (245)
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A Mother and a Physician: Navigating Her Daughter’s NMOSD Diagnosis – Maggie’s Story (244)
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243: A Child Life Specialist’s Search for Answers: A Long COVID Diagnosis - Jessica’s Story
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242:A Daughter's PCHD19, Autism + Epilepsy Diagnosis: The motivation behind the connected parent-Julie's Story
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241: How a Kidney Transplant started a mission to help Transplant Families-Cheryl + Kimmy's Story
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240: How to Stay Calm During Medical Procedures
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239: Finding Grants Brought Hope - Abby's Story: A son's near drowning accident
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238: Parents: How to Make the Most out of Rounds in the Hospital
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237: Holding Space for Hope : The Final Episode of 2024
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236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story
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235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story
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234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure
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233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story
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232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story
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231: Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know
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230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story
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229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim’s Story
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228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story
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227: Searching for a Diagnosis: A Rare Disease Mom and Advocate's Journey - ADCY5 Gay's Story
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226. Moms on a Mission: Raising Pediatric Feeding Disorder Awareness with Jaclyn & Athena from Feeding Matters
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225: Embracing Alopecia: A Mother’s Journey of Advocacy, Instincts, and Resilience-Lexi's Story
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224: A son with Burkitt lymphoma at 8 year's old - Reina's Story
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223: [6 minutes] Big News: The Child Life On Call App is Now SupportSpot!
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222: A son born at 25 weeks after loss, NICU NP mom and podcaster: Ashley O'Neil
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221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE
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220: Know EXACTLY When Rounds is Happening with Q-Rounds with Dr. Michael Pitt
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219: 60 Years Later: Reflecting on a Daughter with Ichthyosis
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218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story
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217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story
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216: How to talk with Kids about Child Abuse - Jane's Story [Repost]
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215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story
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214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story
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213: Parents, CCLS, Students: Show Up Exactly As You Are
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212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story
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211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story
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210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String
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209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story
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208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story
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Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist
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206: Founder's Vision: Katie's Journey, Child Life Tech, Future Insights
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205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss
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204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story
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203: 12 Years to Diagnosis, Understanding Four Key Emotional Reactions, and Channeling Her Story into Positive Action - Jessica's Story
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202: Infantile Spasms, Healing from Trauma and Emotional Resilience
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201: Personal Growth Theory, NEC in the NICU and Shielding Siblings - Kathryn’s Story
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200: Anonymous questions from Instagram, Katie's personal burn story, and reflecting on 2023
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Episode 199 | Kate's Story- A daughter with Infantile Spasms
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Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis (NEC)
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Episode 197 | James' Story- A son with a congenital heart defect
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Episode 196 | Hannah’s Story-A son with VACTREL Association
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Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome
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Episode 194 | Keeley's Story- A daughter with hydrops fetalis
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Episode 193 | Katie’s Takeaways from the American Academy of Pediatrics Conference
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Episode 192 | [Repost] Teresa's Story- A daughter with Spina Bifida and a Tethered Cord
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Episode 191 |[Repost] Shani’s Story-A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia
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Episode 190 |Sara’s Story- Telling your Child you have Cancer [Repost in honor of Breast Cancer Awareness Month]
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Episode 189 | Ryan's Story - A son with Costello Syndrome
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Episode 188 | Rhandyl and Deonna's stories from Raising Disabled
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Episode 187 | Kayleigh's Story-A Child Life Specialist's son with Tetralogy of Fallot [part 2]
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Episode 186 | Kayleigh's Story - A Child Life Specialists son with Tetralogy of Fallot [part 1]
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Episode 185 | J.R.'s Story- A son with a Rare Disease
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Episode 184 | Casey's Story - Free Resources to Bring Families Together
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Episode 183 | An EMS professional tells us how to prepare your child for an ambulance ride
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Episode 182 | Virtual Child Life Services in the Hospital with Sarah Lanham
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Episode 181 | Jan’ s Story- A daughter with PVOD and a Lung Transplant
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[Child Life 101] How to Prepare Babies, Kids and Teens for Procedures
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Episode 180 | Dianne's Story- How Neurofeedback helped her son
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Episode 179 | Laura's Story-Why Therapeutic Play is Essential During Healthcare Experiences
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Episode 178 | Expert Guest on Adolescent Medicine: Dr. Hina Talib
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Episode 177 | Kimberly’s Story - Cord Prolapse and Emergent C-Section at 26 Weeks
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[Child Life 101] Empowering Parents: How Child Life Specialists Teach Effective Advocacy
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Episode 176 | Deaf, Deaf+ and Hard of Hearing Support with Barbara Hecht from Clarke Schools
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Episode 175 | Child Life in the Emergency Room (ER)
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[Child Life 101] Supporting the Siblings in Pediatrics
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Episode 174 | Finding out your Child has Cancer During your Pediatric Residency with Dr. Maureen Michele
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[Child Life 101] How to Have Difficult Conversations with Kids
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Episode 173 | Dr. Korie Leigh - What Does Grief Feel Like?
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Episode 172 | Rylee’s Story - A child life specialist with Tetralogy of Fallot
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Episode 171 | Dr. Kate Lund - Growing up with Hydrocephalus
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[Child Life 101] How to Support Kids in Pain
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Episode 170 | Courtney’s Story - A daughter with Trisomy 21, AVSD and Pulmonary Hypertension
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[Child Life 101] What is Child Life?
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Episode 169 | Dr. Kelly Fradin - Building Trusted Relationships with your child’s Pediatrician
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[Child Life 101] Series Preview
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Episode 168 | Olivier’s Story - A Film Inspired by A son with Down Syndrome
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Episode 167 | Leah’s Story - A son with Hypoplastic Left Heart Syndrome
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Episode 166 | Lo’s Story - Milk Making, Breastfeeding and Lactation Support in the Hospital Setting
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Episode 165 | Kelsey’s Story - A daughter with gastroparesis and hereditary spherocytosis
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Episode 164 | [Repost] How to Talk with Kids About Child Abuse with Jane Donovan
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Episode 163 | Emma’s Story - A daughter with Trisomy 18
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Episode 162 | Kayla’s Story - A daughter with Ollier’s Disease
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Episode 161 | Dana’s Story - Micropreemie Twins Born at Home
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Episode 160 | Jodi’s Story - HELLP Syndrome and a Premature Birth
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Episode 159 | Ryan’s Story - A son with Muscular Dystrophy (Becker’s)
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Episode 158 | Kristen’s Story - Licensed Family Therapist - Anxiety in Children
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Episode 157 | Crystal Polk - Social Worker + Caregiver Expert
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Episode 156 | Michele’s Story - Child loss and the sibling relationships
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